Works with healthcare providers, blood cancer patients and family members to assist in understanding and utilization of appropriate genetic tests and genomic profiling tests (hereafter referred to as ‘genetics or genetic’). Utilizes specialized knowledge and understanding of genetics, hematologic malignancies and nursing assessment skills to determine qualification for specific testing panels. Educates patients and family about their diagnosis and the application of testing results to guide diagnosis, prognosis and treatment decisions. Supports patients and family through treatment decisions, including decisions to end treatment with curative intent. In addition to genetics responsibilities, collaborates with LLS Clinical Trial Support and Information Specialists to provide education and clinical trial support services to patients and family. Serves as primary resource to Clinical Trial and Information Specialists for guidance around all aspects of genetic/genomic testing and interpretation.
- Serve as internal LLS resource on the use of genetic analyses in the diagnosis, classification, prognosis and therapeutic decision making in hematologic malignancies
- Consult with healthcare providers regarding patient cases that may benefit from genetic testing
- Differentiate between genetic tests and provide information to assist healthcare providers in their selection of the most suitable test for a particular patient
- Provide information to patients, family members, and healthcare providers to aid in the interpretation of genetic testing results
- Respond to questions from patients and family members about genetic testing and testing results
- Guide patients and providers to resources to assist with reimbursement challenges surrounding genomic testing or treatments recommended as an outcome of genomic testing
- Collaborate in the development of patient and provider directed education tools and resources about genetic testing
- Obtain and maintain professional certification as an APN in genetics from the American Nurses Credentialing Center or other accredited genetic organization
- Participate in the diffusion and communication of appropriate genomic research to providers
- Function in the role of clinical trial support specialist, helping patients identify and enroll in an appropriate trial and incorporating the results of genetic testing
- Independently maintain own caseload of patients seeking enrollment into clinical trials
- Uses problem solving skills to help patients overcome obstacles to trial enrollment
- Maintain/increase knowledge and understanding of hematologic cancers, blood and bone marrow transplant and psychosocial aspects of living with cancer
- Contributes to continual process improvement of clinical trial support procedures
- Develops effective working relationships within the Leukemia & Lymphoma Society and with trial site staff, investigators, sponsors, patient and professional organizations
- Exhibits deep understanding of ethical standards and Federal Regulations in human subjects research
- Participate in team meetings and special projects as requested
- Current RN licensure required
- OCN certification preferred
- A minimum of two years experience as a genetic clinical nurse or advanced practice nurse in genetics
- Completion of advanced training program in genetics/genomics nursing
- Current certification in Genetic/Genomic Clinical Nursing preferred
Position Requirements
- Demonstrated ability to work both independently and in a team environment
- Demonstrated commitment to independent learning and skill enhancement
- Detail oriented and flexible
- Excellent oral and written communication skills’; outstanding interpersonal skills
- Proficient in Microsoft Office including Excel, Word, and OneNote
- Occasional travel to conferences and meetings