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Specialist, Policy and Advocacy

This job is no longer available

Bethesda, MD, USABethesdaMDUSA

The Policy and Advocacy Specialist reports to the Manager of Policy and Advocacy to support and execute strategic initiatives that enable access to high-quality, specialized CF care. The specialist will monitor coverage and access issues, coordinate appropriate responses, liaise with internal and external partners to address issues, and assist in evidence generation to encourage a favorable coverage environment for people with cystic fibrosis.

The Cystic Fibrosis Foundation (CFF) and its employees embrace their commitment to its core values.  These core values are the pillars on which CFF stand and will continue to sustain us as we move forward. 

Areas of Responsibility: 
  • Serve as subject matter expert on a variety of coverage and access topics, including health plan policies, Medicaid and state health program offerings, and CF care and treatments.
  • Monitor changes to clinical coverage policies within Medicaid and other payer programs; identify trends; recommend and coordinate appropriate, evidence-based CFF response.
  • Assist in the development and execution of policy research and analysis to support CFF coverage priorities. Prepare position papers and correspondence on key policy and coverage issues.
  • Serve as point person for engagement with internal and external steering committees, comprised of clinicians of various disciplines, patients, and family members, to facilitate input into policy strategy and coverage-related programming.
  • Guide policy communication efforts with CFF assets including external stakeholders such as clinicians, people with CF, and industry colleagues, internal partners, and the CF community on access-related issues.  
  • Participate in conferences, seminars, and other professional development activities to maintain and enhance expertise.
  • Manage and execute special projects.
  • Provide logistical support as needed such as agenda development, special event preparation, internal trainings, creation of materials, and conducting follow-up with stakeholders, as needed.
  • Attend legislative hearings, briefings, and meetings of coalitions, as needed.
  • Other duties as assigned.
Educational Background: 
Bachelor’s degree required.
  • Minimum three years of experience working in health care policy.   
  • Requires excellent writing, verbal, and interpersonal skills.
  • Detail oriented and dedicated to creative problem solving.
  • Individual should be highly analytical, organized, conscientious, resourceful, and adaptable.
  • Team player with positive, professional attitude and strong work ethic.
  • Must be proficient in Microsoft Office suite, experience with Adobe and/or Photoshop suites a plus. 


  • Reports to the Manager of Policy and Advocacy
Job Function: 

Organization Info

Cystic Fibrosis Foundation

Bethesda, MD, United States
About Us

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.

The Cystic Fibrosis Foundation has 70 chapters and branch offices across the country that work diligently to raise funds to help support the search for a cure. In addition, the Foundation provides funding for and accredits more than 120 CF care centers and 53 affiliate programs nationwide, including more than 100 programs for treating adults with CF. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF. Located at teaching and community hospitals across the country, these care centers offer the best care, treatments and support for those with CF.

Listing Stats

Post Date: 
May 13 2019
Active Until: 
Jun 13 2019
Hiring Organization: 
Cystic Fibrosis Foundation