The Cystic Fibrosis Foundation, a highly regarded voluntary health services agency, is seeking a Patient Registry Technical Coordinator in the National Headquarters office in Bethesda, Maryland. The CF Foundation Patient Registry (CFFPR) is a comprehensive, longitudinal database that collects information on prescribed therapies, key medical outcomes, and healthcare utilization. The CFFPR holds information on cystic fibrosis patients receiving care at CF Foundation accredited care centers. Personnel at these care centers enter data into the web-based registry application, PortCF. This position requires a high level of accountability for maintaining confidentiality of Protected Health Information (PHI) and serves to provide administrative and other support to the Registry team and to the users of the registry-related IT applications.
- Regularly communicate with Care Center Network partners to answer questions related to the registry by responding to emails, in a timely and efficient manner.
- Assist with editing and review of documentation, user manuals, and other educational resources.
- Maintain and organize existing filing system.
- Provide meeting support including scheduling meetings, setting up online video conferencing system, and preparing and distributing agenda, supporting documents, and minutes.
- Document, track, and manage issues, including timely update of issue/risk logs, facilitating development and documenting action plans.
- Assist with production, review, and distribution of annual reports.
- Assist in the maintenance of standard operating procedures for the Patient Registry.
- Provide ongoing support to the Application Manager with special projects and duties as needed.
- Two years of directly related work experience.
- Proficiency in Microsoft Office Suite (Word and PowerPoint) and strong Excel skills.
- Ability to manage multiple tasks and shift priorities as needed.
- Strong attention to detail for both completeness and accuracy
- Strong writing, communication, technical and organizational skills.
- Strong interpersonal skills and ability to carry out tasks independently.